Address:

4301 Connecticut Avenue, NW, Suite 404

Washington, DC 20008

Phone:

1-610-872-7608

Internet address:

http://www.geneticalliance.org/

Description of services provided:

The Genetic Alliance offers information on genetic disorders and the impact of the diagnosis on individuals and families. From the main page, you can search conditions, organizations, and resources.

Address:

11 Keats Court

Coto de Caza, CA 92679

Phone:

1-888-999-9428

Internet address:

http://www.genetic.org/

Description of services provided:

This website provides support services, a newsletter, and information about Klinefelter syndrome and other sex chromosome variations.

Address:

1275 Mamaroneck Avenue

White Plains, NY 10605

Internet address:

http://www.marchofdimes.com/

Description of services provided:

The March of Dimes provides information on pregnancy and birth defects and gives referrals.

Address:

666 Broadway, 8th floor

New York NY, 10012

Phone:

1-800-221-4602

Internet address:

http://www.ndss.org/

Description of services provided:

The National Down Syndrome Society provides information on genetic disorders and listings of genetic counseling services.

Address:

233 Canterbury Drive

Wallingford, PA 19086

Phone:

1-800-336-GENE

1-202-966-5557

Internet address:

http://www.nsgc.org/

Description of services provided:

On the National Society of Genetic Counselors website, you can learn more about genetic disorders and find a list of genetic counseling services.

Address:

2982 South Union St.

Rochester NY, 14624

Phone:

1-800-716-7638

Internet address:

http://www.trisomy.org/

Description of services provided:

This nonprofit volunteer organization is a network of families and professionals who are dedicated to offering support to those affected by Trisomy 18, 13, and related chromosomal disorders. You'll find a resource center with fact sheets, a bookstore, membership information, and upcoming events.

Address:

231 W. Park Ave.

Sellersville, PA 18960

Phone:

1-215-453-2117

Internet address:

http://www.triplo-x.org

Description of services provided:

Triple X Syndrome provides articles, prenatal diagnosis information, and contacts for those affected by this condition.

Address:

14450 T.C. Jester

Houston TX, 77014

Phone:

1-800-365-9944

Internet address:

http://www.turnersyndrome.org/

Description of services provided:

The Turner Syndrome Society creates awareness, promotes research, and provides support for all those affected by this condition.

Address:

P.O. Box 268

Lakewood CA, 90714

Phone:

1-888-970-0777

Internet address:

http://www.fivepminus.org

Description of services provided:

This society encourages and facilitates communication among families affected by 5p syndrome by raising awareness and providing information.

Address:

5700 Midnight Pass Rd., Suite 6

Sarasota FL 34242

Phone:

1-800-926-4797

Internet address:

http://www.pwsausa.org

Description of services provided:

The Prader-Willi Syndrome Association provides information on this condition, as well as resources, support services, links, and publications.