The impact of psoriasis on the skin can be very visible. What is
often not so apparent is the toll it can take on sufferers'
experiences, feelings, and behaviors. Shelly, who developed
psoriasis at the age of eleven, knows the emotional pain all too
well. "I was often treated like an outcast," she recalls. "When
other kids noticed the psoriasis on my arms, they thought it was
contagious and didn't want to come near me. Some parents even told
their kids to stay away from me."
For many years, Shelly struggled with feelings of shame, low
self-esteem, isolation, and loss of self-confidence. "For me, the
worst was seeing the fear it aroused in some people. After a while,
I started to feel like I was a "freak" she says. These feelings
carried over into adulthood. Shelly wore long sleeves to cover up
her psoriasis, even on hot days. She avoided the beach. Socially,
she had become so unsure of herself that she expected rejection. "I
dated a few men who were emotionally abusive, and I just put up
with it. I thought no one else would want me."
In her late twenties, Shelly decided to become more proactive
with regard to her skin disease. "I was working as a preschool
teacher and had done a good job hiding my psoriasis. Then one day
at a gathering, one of the administrators caught a glimpse of my
arm and seemed very alarmed. Shortly thereafter, I was fired for
reasons that made no sense to me. I felt that it was because of the
psoriasis." Driven by her emotional wounds, Shelly entered therapy
and became involved in efforts to educate the public about
psoriasis. "Having worked through the shame and humiliation, I was
finally able to talk openly and confidently about my skin
condition. The most beneficial thing for me has been working to
eliminate fear, ignorance, and insensitivity in others" she
says.
Experiences like Shelly's are not uncommon among sufferers of
psoriasis and other chronic skin conditions. Feelings of sadness,
helplessness, guilt, anger, and low self-esteem may surface as a
person struggles to cope with the disease. Frustration can arise
from lack of understanding about the disease or the difficulty
finding an effective treatment. Sufferers may not have anyone who
can understand the challenges that psoriasis brings to their lives.
These are completely normal responses, but sometimes they lead to
depression.
Not everyone with a chronic skin disease needs help developing
emotional coping strategies, but many do, especially if their skin
condition is severe. Emotional and social coping varies among
individuals and is often related to personality type. Some people
are less self-conscious than others, or better able to shrug off
inquistive looks, insensitive comments or rejection. Here are some effective
coping strategies.
A good therapist can help you work through pain,
self-consciousness, and psychological immobilization. If possible,
it would be beneficial to find a therapist with experience treating
individuals with skin conditions. Many people find help and freedom
by being able to talk openly about their condition and how it has
impacted their lives. A good therapist can help you work through
feelings of shame and self-consciousness so that you have a better
quality of life. A good therapist can help you feel more
comfortable and confident with psoriasis, but cannot necessarily
help you erase all the disturbing feelings.
Many people who suffer from psoriasis find it helpful to talk to
others who have the same condition. A good place to start would be
contacting the National Psoriasis Foundation. Support networks
provide an atmosphere of understanding, acceptance, openness, and
information sharing. If no support groups exist in your area,
consider starting one. Even a small and informal network with just
one or two people can help you feel less alone in your
suffering.
- Learn as much as you can about psoriasis and keep yourself
abreast of new information. By educating yourself, you will be
better able to take care of yourself and discuss your condition
with others.
- Practice answering questions about psoriasis so that you are
more comfortable talking about it.
- Focus on the positive things in your life—family, friends,
hobbies, pleasurable activities, developing your talents, etc. Find
new activities and groups to join, if necessary. Psoriasis may be
painful, but it's just one small part of your life. Don't let it
take center stage and hold you back from living fully.
-
Do things that empower you. This may include:
- Setting and achieving personal and professional goals
- Developing friendships and support systems
- Reframing the way you view your condition-seeing it as a
medical condition rather than as something weird and
embarrassing
- Taking good care of your health and appearance